Our Project: Reflections
Reflections Episode 4
“I was trying to advocate for my brother, I was seen as being aggressive, I was viewed as being angry. They never got to know that I’m advocating for my brother, I’m also in grad school for social work. Nobody really knew who he was, who we were as a family. There is distrust everywhere.” Kay Hudson
Episode 4 revolves around a video titled Race Matters: Ethnic, Cultural and Spiritual Considerations in Aid in Dying. Yet it is not focused on the ethical and policy aspect of AID in Dying. Rather it invites a look at aid in dying within the framework of racism, marginalized populations and historical events linking and challenging foundational palliative and social work concepts including advance directives, autonomy, trust and relationship. Readings and an additional video are provided to enhance and broaden the lens through which we consider a policy and clinical practice such as aid in dying.
Resources & Links Episode 4
Race Matters. Ethnic, Cultural & Spiritual Considerations in Aid in Dying. Presented by the National Clinicians Conference on Medical Aid in Dying; with Terri Laws, Tracey Bush, Alan Elbuam. 2020.
Please follow this link to watch the video on Vimeo. https://vimeo.com/396806694
Episode 4 resources:
Elbaum, A. (2020). “Earning Patient Trust: More Than a Question of Signaling.” Hastings Cent Report 50(1): 29-31.
Sullivan, L. S. (2020). “Trust, Risk, and Race in American Medicine.” Hastings Cent Rep 50(1): 18-26.
Barness, et.al. (2020) Societies Position Statements on Physician Assisted Suicide & Euthanasia. BMC Med Ethics21:111.
Kagawa Singer, M. and L. J. Blackhall (2001). “Negotiating cross-cultural issues at the end of life: “You got to go where he lives”.” JAMA 286(23): 2993-3001.
Halpern, J. “From idealized clinical empathy to empathic communication in medical care.” Medicine, Health Care and Philosophy. Summer, 2013.
Laws, T. (2019) “How Race Matters in the Physician-Assisted Suicide Debate.” Religion and Politics. Retrieved from https://religionandpolitics.org/2019/09/03/how-race-matters-in-the-physician-assisted-suicide-debate/
Elbaum, A. (2020). “Black Lives in a Pandemic: Implications of Systemic Injustice for End-of-Life Care.” Hastings Center Report 50(3): 58-60.